News & Updates

Preliminary data from NICHD-funded researchers provides caregiver-reported information on how children and teens fared during the first months of the COVID-19 pandemic.

Looking back and looking ahead. NICHD Director Dr. Diana W. Bianchi joins other leaders across NIH in reflecting on the work of the Rapid Acceleration of Diagnostics (RADx) program and discussing plans for the future.

For many COVID-19 patients, full recovery remains elusive even long after they should feel “better.” NIH recently announced research opportunities to understand COVID-19 long haulers, who have what researchers now refer to as Post-acute sequelae of SARS-CoV-2 infection (PASC). NICHD joins these opportunities while remaining focused on PASC patients within our audiences of interest—pregnant and lactating people, children, and those with disabilities.

Physicians could improve prescribing practices for children with severe neurological impairments by periodically administering parent questionnaires to assess the children’s symptoms, suggests a study funded by the National Institutes of Health. Such routine assessments could help detect adverse effects of drug interactions or cases in which medications have been under or overprescribed.

The National Center for Medical Rehabilitation was established in 1990 through the landmark Americans with Disabilities Act.

Intramural Group Wins Microphotography Prize

The pandemic reinforces why the NIH INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project matters to families and communities.

NIH announces funding for three centers for collaborative research on Fragile X syndrome, the most common inherited form of intellectual and developmental disability, and related conditions.

NIH has launched a new initiative that will combat the growing problem of maternal mortality and morbidity in the United States.

The drug miglustat appears to stabilize the swallowing problems that occur in children and adolescents with Niemann-Pick type C1 (NPC1), a rare and ultimately fatal neurological disease, according to a study by researchers at the National Institutes of Health. The authors conclude that the drug could slow the deterioration of swallowing function in NPC1 cases and decrease the risk of pneumonia resulting from aspiration, or inhaling food or drink. Aspiration pneumonia accounts for roughly 2 out of 3 deaths in people with NPC1.

Theresa Hayes Cruz, Ph.D., has been selected as director of the National Center for Medical Rehabilitation Research (NCMRR).

The National Institutes of Health’s Peter Basser, Ph.D., has been elected to the National Academy of Engineering for his work in developing diffusion tensor magnetic resonance imaging (dt-MRI) and streamline tractography, which enables neurosurgeons to visualize and avoid sensitive structures within the brain. Diffusion tensor MRI measures the diffusion of water molecules, which can be used to probe the structure and architecture of brain tissue. It is used by neurologists and radiologists to diagnose stroke, cancer, and other brain disorders.

R. Douglas Fields, Ph.D., chief of NICHD’s section on Nervous System Development and Plasticity has been named a distinguished Fellow of the American Association for the Advancement of Science.

The Trans-NIH Fragile X Coordinating Committee, led by NICHD, recently published the final NIH Strategic Research Plan on FMR1-Associated Conditions.

A study from federal researchers shows that information about ways to reduce the risk of sleep-related infant deaths is not reaching all caregivers or healthcare providers.

NICHD researcher Mary Dasso, Ph.D., considers herself to have been lucky at many points in her career. But luck alone cannot account for her success as a principal investigator and program leader. Read about her career over the decades.

Acceptance and support from communities and families appear to lessen the toll of mental health conditions experienced by former child soldiers transitioning to early adulthood, according to a study by researchers at the National Institutes of Health and other institutions.

NIH invites scientists, advocacy and family groups, representatives from federal and local agencies, and others to provide comments and suggestions on its draft research plan on Fragile X syndrome and associated conditions.

Scientists and engineers are pioneering new tools and methods to advance healthcare in revolutionary ways. Learn about emerging technologies funded by NICHD.