Stillbirth Resources

Links to websites of groups that study or provide information about stillbirth.

  • American College of Obstetricians and Gynecologists (ACOG) external link
    ACOG is a professional membership organization that represents more than 60,000 obstetrician-gynecologists (ob-gyns), medical students, and other health care providers. ACOG members provide information to the public on a variety of topics related to women’s health care, including stillbirth external link.
  • Breaking the Silence of Stillbirth external link
    In this post on the New York Times’ Motherlode blog, one mother tells her story of stillbirth and advocates for more conversation about this common problem.
  • The Compassionate Friends external link
    The Compassionate Friends is a support organization of and for families that have lost a child.
  • Count the Kicks external link
    The Count the Kicks campaign aims to raise awareness about fetal movement and possible prevention of stillbirth. They offer an app, educational information, and data about counting fetal kicks and movements.
  • Family Stories
    The Centers for Disease Control and Prevention collected a series of stories from mothers who have lost a child through stillbirth (also available in Spanish).
  • First Candle external link
    This nonprofit organization comprises parents, caregivers, researchers, and government, business, and community service groups that are working together to advance infant health and survival. The Bereavement Support external link page provides resources for families that are grieving the loss of a baby, including a grief counseling phone line. A page for Online Support external link includes a link for an online stillbirth support group.
  • Global Alliance to Prevent Prematurity and Stillbirth (GAPPS) external link
    GAPPS aims to improve birth outcomes worldwide by advancing preterm research and increasing awareness of stillbirth as a global health issue. GAPPS provides advocacy resources external link and guilds external link for families, friends, and community members.
  • International Stillbirth Alliance external link
    This organization promotes and supports research on stillbirth and works to develop methods to prevent stillbirth. The Resources external link page provides information about support services, memory-making, advocacy, and other resources for bereaved parents.
  • Share Pregnancy & Infant Loss Support, Inc. external link
    This organization supports families that are grieving the loss of an infant or a pregnancy.
  • Star Legacy Foundation external link
    This organization supports stillbirth research and education and offers resources for parents who have lost a baby, as well as their family members and friends.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

NICHD Resources

Other Resources

  • ACOG Management of Stillbirth external link
    This document describes ACOG’s guidelines for providers’ management of stillbirth.
  • Helping Babies Survive external link
    The American Academy of Pediatrics (AAP) runs Helping Babies Survive, a suite of evidence-based, hands-on training programs developed to reduce neonatal mortality in resource-limited environments. The first program of this initiative was Helping Babies Breathe (HBB), a newborn-care education project that taught health care providers resuscitation techniques and other basics of newborn care for the first minute of life. NICHD was one of several international partners that led HBB.
  • The Lancet series on ending preventable stillbirths external link
    The series highlights the state of stillbirths, missed opportunities, and actions that can help end preventable stillbirths and reach goals for maternal, neonatal, and child survival by 2030. This series is a collaboration that involves many countries and professional organizations.
  • Maternal and Child Health Library at Georgetown University Digital Library: Infant Mortality and Pregnancy Loss external link
    These resources on infant mortality and pregnancy loss analyze data, report on research aimed at identifying causes and promising intervention strategies, and describe risk-reduction efforts as well as bereavement-support programs.
  • Pregnancy Loss and Infant Death Alliance (PLIDA) external link
    PLIDA supports health care providers and parent-advocates in their efforts to improve care for families that experience a miscarriage, stillbirth, or death of an infant.
  • Stillbirths: Breaking the Silence of a Hidden Grief external link
    This editorial in the medical journal The Lancet shares the stories of parents who have experienced the loss of a child through stillbirth and talks about the importance of bereavement support and prevention efforts. (Access to the article is free, but readers must create a login and password.)
  • Stillbirth Classification—Developing an International Consensus for Research
    This article, published in Obstetrics and Gynecology, resulted from an NICHD-sponsored workshop to review the pathophysiology of conditions underlying stillbirth to define causes of death.
  • World Health Organization (WHO): Stillbirth external link
    This page presents data on national, regional, and worldwide estimates of stillbirth rates.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

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