Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.
The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.
Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.
How many people are affected/at risk by McCune-Albright syndrome (MAS)?
Number of People Affected
Researchers consider MAS to be a rare disease, meaning it affects 1 in every 100,000 to 1 million live births worldwide.1
Who is at risk?
Because the genetic change or mutation that causes MAS occurs at random very early in fetal development, MAS is not an inherited disease, meaning parents do not pass it on to their children.1
MAS likely occurs equally in males and females.