Pheochromocytoma and Paraganglioma: For Patients and Consumers

General Information

• NIH
  • The NICHD accepts both adults and children into its study on The Proper Diagnosis, Treatment, Genetics, and Research of Pheochromocytoma and Paraganglioma.
  • The National Cancer Institute NCI provides information on pheochromocytoma treatment, prevention, research, and more.
  • National Library of Medicine (NLM) offers information on pheochromocytoma in MedlinePlus and an expert-reviewed summary about pheochromocytoma and paraganglioma treatment on PubMed
• Mayo Clinic
  The Mayo Clinic page on pheochromocytoma  contains information on symptoms, causes, risk factors, complications, and treatment.

Services, Resources, and Support

• Hormone Health Network
  Formerly the Hormone Foundation, the Hormone Health Network is an educational resource that provides information on the prevention, treatment, and cure of hormone-related conditions.
• National Adrenal Diseases Foundation
  This organization provides information and resources on adrenal diseases.
• Pheopara Alliance
  The Alliance provides support, research, and information on pheochromocytoma for patients and their families.
• Von Hippel-Lindau (VHL) Family Alliance
  The VHL Family Alliance provides access to articles and research in all areas of health care related to VHL.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.