McCune-Albright Syndrome (MAS): For Patients and Consumers

General Information

• NIH Office of Rare Diseases Research
  The Office maintains information about MAS.
• Fibrous Dysplasia Foundation 
  The Foundation is a nonprofit organization that supports families and advocates for research for MAS and related diseases. It also provides slides from a 2009 presentation, What is McCune-Albright syndrome, and how to take care of your child with MAS  (PDF - 1.4 MB).
• Genetics Home Reference: What is McCune-Albright syndrome?
  The Genetics Home Reference is a resource of the National Library of Medicine.
• MAGIC Foundation 
  The MAGIC Foundation maintains information about the various presentations of MAS .
• Medscape: Pediatric McCune-Albright Syndrome
  This overview at Medscape describes the pathophysiology and epidemiology of pediatric MAS.

Services, Resources, and Support

• American Association of Clinical Endocrinologists (AACE) 
  AACE has a membership directory, "Find an Endocrinologist ," where you can input a city and state to locate an endocrinologist.
• Genetics Home Reference
  Find information on support for patients with MAS.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.