Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.

The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.

Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.

How many people are affected/at risk for intellectual and developmental disabilities (IDDs)?

The exact number of people affected by IDDs is unknown. This is because IDDs cover a wide range of conditions, many of which are diagnosed several years after birth, rather than in newborns.

Current estimates suggest that 2% to 3% of children in the United States have some form of intellectual disability.1

According to the Centers for Disease Control and Prevention (CDC), about 1 in 33 newborns (or 3%) in the United States are born with conditions related to problems in prenatal development.2

For current statistics on the number of children born with specific types of these conditions, visit the CDC Data and Statistics webpage on birth defects.

Citations

  1. American Academy of Pediatrics. (2012). Health issues: Children with intellectual disabilities. Retrieved August 9, 2012, from http://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Intellectual-Disability.aspx external link
  2. Centers for Disease Control and Prevention. (2008). Update on overall prevalence of major birth defects-Atlanta, Georgia, 1978-2005. Morbidity and Mortality Weekly Report, 57, 1-5. Retrieved August 9, 2012, from http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5701a2.htm
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