Intellectual and Developmental Disabilities (IDDs): For Patients and Consumers

General Information

Services, Resources, and Support

  • Safe Return to School For All External Web Site Policy summarizes current evidence and best practices to help administrators, educators, and families and students—including students with disabilities—return to school safely in the context of COVID-19. The information provided is based on collaborative research from the NICHD-funded Washington University Intellectual and Developmental Disabilities Research Center, the University of Missouri-Kansas City Institute of Human Development, and the Kennedy Krieger Institute (Maryland), in collaboration with the Special School District of St. Louis County, Missouri.
  • Association of University Centers on Disabilities External Web Site Policy: This organization provides support services, education, and service activities for families and their loved ones affected by developmental and other disabilities.
  • HHS, Administration on Intellectual and Developmental Disabilities strives to ensure that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent and needed community services, individualized supports, and other forms of assistance that promote self-determination, independence, productivity, and integration and inclusion in all facets of community life.
  • The Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities (NCBDDD): This center was established in 2001 following the passage of The Children’s Health Act of 2000. It measures the incidence and prevalence of birth defects and developmental disabilities in the U.S. population and disseminates related health information.
  • The Arc External Web Site Policy is a reference website supporting families and their loved ones affected by intellectual and developmental disabilities.
  • The March of Dimes External Web Site Policy is an informative resource on child health and welfare.
  • The American Speech-Language-Hearing Association External Web Site Policy supports and promotes speech, language, and hearing programs and initiatives.
  • NIH, Office of Rare Diseases Research, provides research information as well as links to patient advocacy groups for rare diseases.
  • Special Olympics External Web Site Policy : This organization supports and promotes athletic activities among those with birth defects and intellectual disabilities and disorders.
  • Genetic Alliance External Web Site Policy: This group provides information and support for those affected by genetic diseases and conditions.
  • This website provides resources and other information on disabilities and other conditions, including information about programs that help support people with these conditions.
  • National Organization for Rare Disorders External Web Site Policy: This federation of voluntary health organizations provides information, resources, and other information on rare disorders.
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