Links to websites of groups that study or provide information about Cushing syndrome.
- NICHD Information:
- National Institute of Neurological Disorders and Stroke (NINDS)
NINDS, part of NIH, studies different aspects of Cushing syndrome and offers information for patients and families. - National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
NIDDK, also part of NIH, provides answers to frequently asked questions about Cushing syndrome. - Cushing’s Support and Research Foundation
The Cushing’s Support and Research Foundation provides support and information for patients and families.- Search the foundation’s database of experts in Cushing syndrome.
- MedlinePlus, National Library of Medicine: Cushing’s Syndrome
The MedlinePlus page on Cushing syndrome includes an overview and links to more information on symptoms, diagnosis, and treatment. - Pituitary Network Association
The Pituitary Network Association is an international patient advocacy organization. Its page on Cushing syndrome includes information on signs and symptoms, diagnosis, and treatment. - The Pituitary Society
The Pituitary Society provides information for patients and families and supports research on pituitary disease.- Read the organization’s patient information guide on Cushing syndrome and Cushing disease .
- American Association of Neurological Surgeons
The association’s website has a patient section that includes background on pituitary surgery and patient stories. It also has a directory of neurosurgeons.- Search the association’s neurosurgeon directory to find a specialist.
- Cushing’s Help Organization
The organization website includes information and a support community. - Daily Strength
Daily Strength hosts a support community and message board for Cushing patients . - Hormone Health Network
The Hormone Health Network offers information on Cushing syndrome and pituitary disorders as well as a function to find an endocrinologist by ZIP code . - National Cancer Institute (NCI)
NCI, part of NIH, offers information on treatments and continuing care of cancer patients and their families.
Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.
- NICHD resources:
- Section on Genetics & Endocrinology (SEGEN)
- NIH Inter-Institute Endocrinology Training Program
- NICHD Division of Intramural Research, Annual Report, 2016 (PDF 42.7 MB): Research accomplishments and scientific discoveries
- Cushing’s Support and Research Foundation
The foundation raises and distributes funds for research. Its website includes a section for medical professionals . - ERCUSYN
This is a European register on Cushing syndrome. - Jackson Laboratory
This repository has a JAX mouse model useful for studying corticosterone excess and its profound developmental effects. - National Center for Biotechnology
This NIH center provides resources about various aspects of Cushing syndrome, including research tools. - Orphanet
This site maintains, updates, and develops free information about rare diseases and orphan drugs based on information from international sources. - The Endocrine Society
This healthcare provider organization has clinical practice guidelines on diagnosis and treatment of Cushing syndrome. - NIH Consensus Development Conference: Management of the Clinically Inapparent Adrenal Mass (“Incidentaloma”) (PDF 563 KB)
This conference, held in February 2002, aimed to better understand the diagnosis and treatment of pituitary incidentalomas by reviewing the scientific evidence available at that time. The findings are no longer current and are provided for reference only.
Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.
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