Cushing Syndrome Resources

• NICHD Information: 
  • Adrenal gland disorders
  • Pituitary tumors
• National Institute of Neurological Disorders and Stroke (NINDS)
  NINDS, part of NIH, studies different aspects of Cushing syndrome and offers information for patients and families.
• National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
  NIDDK, also part of NIH, provides answers to frequently asked questions about Cushing syndrome.
• Cushing’s Support and Research Foundation 
  The Cushing’s Support and Research Foundation provides support and information for patients and families.
  • Search the foundation’s database of experts  in Cushing syndrome.
• MedlinePlus, National Library of Medicine: Cushing’s Syndrome
  The MedlinePlus page on Cushing syndrome includes an overview and links to more information on symptoms, diagnosis, and treatment.
• Pituitary Network Association 
  The Pituitary Network Association is an international patient advocacy organization. Its page on Cushing syndrome  includes information on signs and symptoms, diagnosis, and treatment.
• The Pituitary Society 
  The Pituitary Society provides information for patients and families and supports research on pituitary disease.
  • Read the organization’s patient information guide on Cushing syndrome and Cushing disease .
• American Association of Neurological Surgeons 
  The association’s website has a patient section  that includes background on pituitary surgery and patient stories. It also has a directory of neurosurgeons.
  • Search the association’s neurosurgeon directory  to find a specialist.
• Cushing’s Help Organization 
  The organization website includes information and a support community.
• Daily Strength 
  Daily Strength hosts a support community and message board for Cushing patients .
• Hormone Health Network 
  The Hormone Health Network offers information on Cushing syndrome  and pituitary disorders as well as a function to find an endocrinologist by ZIP code .
• National Cancer Institute (NCI)
  NCI, part of NIH, offers information on treatments and continuing care of cancer patients and their families.
  • Find information about adrenal cancer.
  • Find information about pituitary cancer.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

• NICHD resources:
  • Section on Genetics & Endocrinology (SEGEN)
  • NIH Inter-Institute Endocrinology Training Program
  • NICHD Division of Intramural Research, Annual Report, 2016 (PDF 42.7 MB): Research accomplishments and scientific discoveries
• Cushing’s Support and Research Foundation 
  The foundation raises and distributes funds for research. Its website includes a section for medical professionals .
• ERCUSYN 
  This is a European register on Cushing syndrome.
• Jackson Laboratory 
  This repository has a JAX mouse model useful for studying corticosterone excess and its profound developmental effects.
• National Center for Biotechnology
  This NIH center provides resources about various aspects of Cushing syndrome, including research tools.
• Orphanet 
  This site maintains, updates, and develops free information about rare diseases and orphan drugs based on information from international sources.
• The Endocrine Society 
  This healthcare provider organization has clinical practice guidelines on diagnosis  and treatment  of Cushing syndrome.
• NIH Consensus Development Conference: Management of the Clinically Inapparent Adrenal Mass (“Incidentaloma”) (PDF 563 KB)
  This conference, held in February 2002, aimed to better understand the diagnosis and treatment of pituitary incidentalomas by reviewing the scientific evidence available at that time. The findings are no longer current and are provided for reference only.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.