These sites offer general information on PKU for members of the public, including information on symptoms, testing, and prevention.
The National Library of Medicine (NLM) provides several resources:
- March of Dimes
The March of Dimes provides fact sheets on PKU in two languages:
- National PKU News
This nonprofit organization is dedicated to providing up-to-date news and information on PKU.
- University of Washington
The Cristine M. Trahms Program for Phenylketonuria provides resources for families of children with PKU:
Services, Resources, and Support
- Mid-Atlantic Connection for PKU and Allied Disorders
This is a network of individuals and families affected by PKU.
- National PKU Alliance
The alliance is a lay advocacy organization that advances PKU research, supports local PKU organizations, and raises awareness about PKU.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.