Pelvic Pain Resources

Links to websites of groups that study or provide information about pelvic pain.

The American Academy of Pain Medicine (AAPM)  aims to advance the field of pain management using an integrative model of patient-centered care by providing evidence-based education for pain practitioners. Visit https://painmed.org/patient-education-resources/ for additional information.

The American Chronic Pain Association provides
tools for communicating with your health care provider  and a resource guide to chronic pain medication & treatment .

The American Congress of Obstetricians and Gynecologists (ACOG)  is an association of obstetricians, gynecologists, and other health professionals who provide health care to women. Search ACOG's Physician Directory  to find a specialist.

The Endometriosis Association  aims to find a cure and prevention for endometriosis while providing education, support, and research to those affected.

The International Pelvic Pain Society  provides a forum for public and professional education related to pelvic pain. Search the Provider Referral Service  to find a pelvic pain specialist. The society's booklets Chronic Pelvic Pain  provide answers to common questions about pelvic pain.

The NIH News in Health article Halt the Hurt! Dealing with Chronic Pain describes research on chronic pain and provides tips for dealing with it.

The National Institute of Neurological Disorders and Stroke's Pain: Hope Through Research includes information on common pain syndromes, diagnosis and treatment of pain, and research on pain.

The National Vulvodynia Association  aims to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders. Search the Support Services Network  to find local support groups.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

International Pelvic Pain Society 
This organization of gynecologists, urologists, psychologists, and other health professionals is committed to an interdisciplinary approach to the treatment of chronic pelvic pain and serves as a forum for professional and public education.

International Association for the Study of Pain  
This professional forum brings together scientists, clinicians, health care providers, and policy makers to stimulate and support the study of pain and to translate that knowledge into improved pain relief worldwide.

NIH Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network 
The MAPP Research Network conducts collaborative studies of urologic chronic pelvic pain (UCPP) disorders. MAPP Research Network scientists are investigating potential relationships between UCPP and other chronic conditions, such as irritable bowel syndrome, fibromyalgia, and chronic fatigue syndrome. The MAPP Research Network includes six Discovery Sites that conduct research studies and two Core Sites that coordinate data collection, analyze tissue samples, and provide technical support.

NIH Pain Consortium 
The NIH Pain Consortium was established to enhance pain research and promote collaboration among researchers across the many NIH Institutes and Centers that have programs and activities addressing pain.

Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research (Institute of Medicine of the National Academies [IOM])  
In this 2011 report, the IOM offers a blueprint for action in transforming prevention, care, education, and research, with the goal of providing relief for people with pain in America.

Research Plan on Vulvodynia (NICHD) (PDF - 682 KB)
Developed by NICHD in collaboration with other federal, private, and nonprofit agencies and researchers in the field, this 2012 research plan lays out an agenda for the rigorous scientific research needed to answer questions and fill in knowledge gaps about vulvodynia.

World Endometriosis Society (WES) 
The society promotes the exchange of clinical and scientific experience and ideas among those committed to advancing understanding of endometriosis.

In 2013, the WES Montpellier Consortium published the first-ever worldwide consensus statement on the management of endometriosis. The statement, published in the journal Human Reproduction, addresses 69 issues related to the management of endometriosis. NICHD scientists and grantees were among those on the Consortium. Visit Global Consortium Identifies Best Management of Endometriosis for more information.

World Congress on Abdominal and Pelvic Pain 
The first conference was held in Amsterdam from May 30 to June 1, 2013, and offered an opportunity for clinicians from a variety of disciplines to gather and forge consensus on topics of common concern. A second meeting was held in 2015, and plans are under way for other meetings in the future .

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS

top of pageBACK TO TOP