Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.

The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.

Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.

Newborn Screening Resources

Links to websites of groups that study or provide information about newborn screening.

  • Baby’s First Test  and Baby’s First Test en Español  are the public face of the Clearinghouse of Newborn Screening Information, which was mandated by the Newborn Screening Saves Lives Act of 2008. The sites offer information for the public and serve as a repository of the latest news and statistics related to newborn screening.
  • The Centers for Disease Control and Prevention offers information on newborn screening and facts about hearing loss in children.
  • The Genetics Home Reference guide to newborn screening is a resource of the National Library of Medicine. It provides information and links to many other resources.
  • The NewSTEPs  maintains a comprehensive resource page for parents and families.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.