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Newborn Screening: For Patients and Consumers

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General Information

  • Baby’s First Test External Web Site Policy is the public face of the Clearinghouse of Newborn Screening Information, which was mandated by the Newborn Screening Saves Lives Act of 2008. It is a vast source of information for the public, as well as a repository of the latest news and statistics related to newborn screening.
  • The Centers for Disease Control and Prevention offers much information on screening for and facts about hearing loss in children.
  • The Genetics Home Reference guide to newborn screening is a resource of the National Library of Medicine. It not only provides useful information but also includes links to many other resources.
  • The March of Dimes External Web Site Policy has a broad mission to "research the problems that threaten the health of babies." In 2010 alone, it invested $27 million in research. Its website offers in-depth information on a number of conditions included in newborn screening.
  • The National Newborn Screening and Genetics Resource Center External Web Site Policy maintains a useful resource page for parents and families.
  • The Newborn Screening Translational Research Network (NBSTRN), established and funded by the NICHD, offers resources and information for parents and consumers.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.

Last Updated Date: 11/30/2012
Last Reviewed Date: 04/12/2013
Vision National Institutes of Health Home BOND National Institues of Health Home Home Storz Lab: Section on Environmental Gene Regulation Home Machner Lab: Unit on Microbial Pathogenesis Home Division of Intramural Population Health Research Home Bonifacino Lab: Section on Intracellular Protein Trafficking Home Lilly Lab: Section on Gamete Development Home Lippincott-Schwartz Lab: Section on Organelle Biology