Carney-Stratakis Syndrome

A diverse group of researchers has found the genetic defects that cause a rare type of familial GIST called “Carney-Stratakis syndrome”. This syndrome has some similarities to Carney’s Triad but it is a distinct entity. This discovery may one day lead to better treatments for the affected patients and may give researchers new insights into Carney’s Triad and possibly into pediatric GIST in general.

For more information on Carney-Stratakis Syndrome please visit the Life Raft Group's page on Carney-Stratakis Syndrome. 

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