Menkes Disease: Patients and Consumers

General Information

Services, Resources, Support

  • Menkes Foundation External Web Site Policy
    The foundation was formed to advocate for children with Menkes disease and raise awareness of the disease.
  • National Organization for Rare Disorders (NORD) External Web Site Policy
    NORD is a voluntary federation of health organizations dedicated to helping people with rare disorders, including Menkes disease. NORD provides information about and assistance with Menkes disease, including financial support for the underinsured and uninsured.
  • The Genetics Home Reference
    This resource provides easily understood information about the effects of genetic variations on human health, including information on how to find a genetic counselor and what to discuss when meeting with a counselor.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.