Congenital Adrenal Hyperplasia (CAH): For Patients and Consumers

General Information

• NIH Clinical Center publishes information about CAH in Spanish and English. Read Facts About CAH  (English) (PDF- 752 KB) and Hiperplasia Suprarrenal Congénita  (Spanish) (PDF - 177 KB).
• The Hormone Health Network publishes a Patient Guide to Congenital Adrenal Hyperplasia .
• The National Adrenal Diseases Foundation offers a fact sheet covering diagnosis, treatment, and prenatal therapy. Read CAH: The Facts You Need to Know  .
• The Medline Plus―Congenital Adrenal Hyperplasia page maintained by the National Library of Medicine includes information about diagnostic tests, treatment, and support groups.

Services, Resources, and Support

• CARES (Congenital Adrenal Hyperplasia Research, Education & Support) Foundation  
  The CARES Foundation seeks to advance quality health care through support, advocacy, education, and research to improve the lives of the CAH community. The foundation issues a newsletter, maintains support groups, posts information about ongoing clinical research, and offers physician referrals.
  • Read about Getting Ready for School 
  • Read Pregnancy and CAH: What Every Woman with Classical CAH Should Know 
• The Hormone Health Network  (previously known as The Hormone Foundation)
  The Hormone Health Network, affiliated with The Endocrine Society, maintains hormone-related health information for the public, physicians, allied health professionals, and the media. The network aims to serve as a resource for the public by promoting the prevention, treatment, and cure of hormone-related conditions through outreach and education. Of particular use to people interested in CAH is the Patient Guide to Congenital Adrenal Hyperplasia  .

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.