Services, Resources, and Support
- CARES Foundation, Inc.
This foundation is a nonprofit organization that supports research on and education about congenital adrenal hyperplasia (CAH). CARES provides the latest resources available to families and individuals with CAH and strives to increase awareness of CAH in the health care community.
- GIST Support International
This community is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST) cancer, family members, friends, and interested professionals. The e-mail distribution list has 1,500 subscribers who form an online community to share information about GIST treatment and to support each other in living with GIST.
- Abramson Cancer Center of the University of Pennsylvania, OncoLink
This website gives cancer patients, families, health care providers, and the general public accurate cancer-related information at no charge.
- Life Raft Group Carney’s Triad,
The Life Raft Group is a nonprofit organization providing support—through information, education, and innovative research—to patients with GIST. The group’s website includes a page with extensive information on the Carney Triad, links to published studies, and a section for medical professionals.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.