Services, Resources, and Support
- CARES (Congenital Adrenal Hyperplasia Research, Education & Support) Foundation
CARES is a nonprofit organization that supports research on and education about congenital adrenal hyperplasia (CAH). CARES provides the latest resources available to families and individuals with CAH and strives to increase awareness of CAH in the health care community.
- GIST Support International
This all-volunteer group includes patients with gastrointestinal stromal tumor (GIST) cancer, family members, friends, and interested professionals. The e-mail distribution list has 1,500 subscribers who form an online community to share information about GIST treatment and to support each other in living with GIST.
This website from the Abramson Cancer Center at the University of Pennsylvania gives cancer patients, families, health care providers, and the general public accurate cancer-related information at no charge.
- Pediatric GIST
This nonprofit organization provides support—through information, education, and innovative research—to pediatric patients with GIST and their families. The group’s website includes a Carney’s Triad section page with extensive information on the Carney Triad and links to published studies.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.