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Bridging the Terminology Gap in Pediatrics: Developing an Action Plan to Support the Continuum from Clinic to Research

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September 21, 2012


NICHD and Pediatric Electronic Health Record Data Sharing Network (PEDSNet, through support from the AHRQ Enhanced Registries Program)


Natcher Conference Center (Building 45), NIH Campus, Bethesda, Maryland


This event will bring together leaders from government, academia, industry, and professional organizations in the field of Pediatrics to organize a governance structure and prioritization mechanism across multiple pediatric terminology efforts. This effort is aimed at harmonizing and bridging the continuum from research to health care delivery in pediatrics.

Proposed topics of discussion at the conference include:

  • Rationale for a standardized pediatric terminology
  • Defining use cases suitable to guide this effort
  • Mapping out a framework for governance and implementation of pediatric terminology.

The anticipated outcomes of this conference are:

  • A consensus governance model
  • An initial set of procedures for structuring that model
  • An action plan for implementing terminologies
  • A set of next steps to formalize the governance process.

You can watch videocast of the conference.


Dr. Anjali Kastorf
Tel: (202) 365-9034

BOND National Institues of Health Home Home Division of Intramural Population Health Research