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Down Syndrome: National Conference on Patient Registries, Research Databases, & Biobanks

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December 2-3, 2010


Intellectual and Developmental Disabilities (IDD) Branch, NICHD; Global Down Syndrome Foundation


Neurosciences Building, 6001 Executive Boulevard, Rockville, Maryland


This conference brought together leaders in the fields of Down syndrome clinical care, advocacy, and research, along with federal partners, including the NICHD. The goal of the meeting was to formulate a strategy for establishing and/or integrating patient registries, research databases, and biobanks into Down syndrome research to further advance the science and clinical trials that will benefit individuals with Down syndrome and their families.

For More Information


Dr. Melissa Parisi, IDD Branch, NICHD
Tel: (301) 496-1383

Last Reviewed: 11/30/2012
Vision National Institutes of Health Home BOND National Institues of Health Home Home Storz Lab: Section on Environmental Gene Regulation Home Machner Lab: Unit on Microbial Pathogenesis Home Division of Intramural Population Health Research Home Bonifacino Lab: Section on Intracellular Protein Trafficking Home Lilly Lab: Section on Gamete Development Home Lippincott-Schwartz Lab: Section on Organelle Biology