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Down Syndrome: National Conference on Patient Registries, Research Databases, & Biobanks

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December 2-3, 2010

Sponsors/Co-Sponsors

Intellectual and Developmental Disabilities (IDD) Branch, NICHD; Global Down Syndrome Foundation

Location

Neurosciences Building, 6001 Executive Boulevard, Rockville, Maryland

Purpose

This conference brought together leaders in the fields of Down syndrome clinical care, advocacy, and research, along with federal partners, including the NICHD. The goal of the meeting was to formulate a strategy for establishing and/or integrating patient registries, research databases, and biobanks into Down syndrome research to further advance the science and clinical trials that will benefit individuals with Down syndrome and their families.

For More Information

Contact

Dr. Melissa Parisi, IDD Branch, NICHD
Tel: (301) 496-1383
E-mail: parisima@mail.nih.gov

Last Updated Date: 11/30/2012
Last Reviewed Date: 11/30/2012
Vision National Institutes of Health Home BOND National Institues of Health Home Home Storz Lab: Section on Environmental Gene Regulation Home Machner Lab: Unit on Microbial Pathogenesis Home Division of Intramural Population Health Research Home Bonifacino Lab: Section on Intracellular Protein Trafficking Home Lilly Lab: Section on Gamete Development Home Lippincott-Schwartz Lab: Section on Organelle Biology