Turner Syndrome: For Patients and Consumers

General Information

• National Library of Medicine
  Produced by the National Library of Medicine, MedlinePlus provides information from the National Institutes of Health about diseases, conditions, and wellness issues.
  • Health Topics: Turner syndrome
  • Encyclopedia: Turner syndrome
  • Genetics Home Reference: Turner syndrome
• National Human Genome Research Institute (NHGRI)
  The NHGRI was developed in collaboration with the U.S. Department of Energy as part of NIH’s role in the International Human Genome Project. The institute created the Division of Intramural Research at NIH to apply genomic technologies to the study of specific diseases.
  • Learning about Turner syndrome
  • About the Genetic and Rare Diseases Information Center

Services, Resources, and Support

• Turner Syndrome Society of the United States (TSSUS)
  TSSUS offers support groups and chapters nationwide and provides health-related resources to patients, families, and health care providers for the diagnosis and treatment of Turner syndrome.
  • What is TS?
  • Fact sheet
  • TS: A guide for families (PDF - 1.37 MB)
  • Care of girls and women with Turner syndrome: A guideline of the Turner Syndrome Study Group (PDF - 156 KB)
• Novo Nordisk
  Novo Nordisk is a global health care company specializing in diabetes care, growth hormone therapy, and hormone replacement therapy.
  • Turner — know your body: An information book on Turner syndrome
• The Hormone Foundation
  The Hormone Health Network provides endocrinology resources and information for patients and health professionals.
  • Turner Syndrome (PDF - 872 KB)

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.