Newborn Screening Resources

Links to websites of groups that study or provide information about newborn screening.

  • Baby’s First Test  and Baby’s First Test en Español  are the public face of the Clearinghouse of Newborn Screening Information, which was mandated by the Newborn Screening Saves Lives Act of 2008. The sites offer information for the public and serve as a repository of the latest news and statistics related to newborn screening.
  • The Centers for Disease Control and Prevention offers information on newborn screening and facts about hearing loss in children.
  • The Genetics Home Reference guide to newborn screening is a resource of the National Library of Medicine. It provides information and links to many other resources.
  • The NewSTEPs  maintains a comprehensive resource page for parents and families.
  • The Newborn Screening Translational Research Network , established and funded by NICHD, offers resources and information for parents and consumers.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

Please note: Links to organizations and information included on this page do not indicate endorsement from NICHD, NIH, or HHS.

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