- NICHD Intellectual and Developmental Disabilities (IDD) Branch Report to the NACHHD Council 2009 (PDF - 1.01 MB, pages 17–18)
The report highlights IDD Branch—supported research and initiatives and outlines its goals for future research.
- Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers
The centers provide research collaboration, training, and information about muscular dystrophy (MD) for basic and clinical researchers and include one or more scientific research resource cores. The NIH Wellstone Muscular Dystrophy Research Network includes several centers with an emphasis on translational and clinical research for MD.
- NICHD Brain and Tissue Bank for Developmental Disorders
The bank seeks to advance the research of developmental disorders, including MD. The objective of this repository of human tissue is to systematically collect, store, and distribute brain and other tissues for research dedicated to the improved understanding, care, and treatment of individuals with developmental disorders. The bank has a separate website for tissue donors and their families, as well as a donor registry.
- NIH National Registry of Myotonic Dystrophy & FSHD Patients and Family Members
The registry aims "to advance research in DM and FSHD by helping recruit patients to participate in clinical studies."
- Muscular Dystrophy Association
The association is the largest nongovernmental funder of research on neuromuscular diseases. Its research page, Hope Through Research,has information on current clinical trials, ongoing research, research grant programs, and conferences on MD.
- FSH Society
The society's site includes information about its international research consortium, research contacts, and grant opportunities.
- Parent Project Muscular Dystrophy
The project maintains information about funded research, clinical trials, and grantee resources. Its research page contains research news and information on research strategies, agents already in the therapeutic pipeline, and drug development.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.