Muscular Dystrophy: For Researchers and Health Care Providers

• NICHD/NIH Resources
  • NICHD Intellectual and Developmental Disabilities (IDD) Branch Report to the NACHHD Council 2009 (PDF - 1.01 MB) Pages 17-18.
    The report highlights IDD Branch—supported research and initiatives and outlines its goals for future research.
  • NICHD Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers
    The centers providing research collaboration, training, and information about muscular dystrophy (MD) for basic and clinical researchers and include one or more scientific research resource cores.
  • Wellstone Muscular Dystrophy Research Network
  • The Eunice Kennedy Shriver NICHD Brain and Tissue Bank for Developmental Disorders
    The bank seeks to advance the research of developmental disorders, including MD. The objective of this repository of human tissue is to systematically collect, store, and distribute brain and other tissues for research dedicated to the improved understanding, care, and treatment of individuals with developmental disorders. The bank has a separate website for tissue donors and their families, as well as a donor registry.
  • The NIH National Registry of Myotonic Dystrophy & FSHD Patients and Family Members is intended "to advance research in DM and FSHD by helping recruit patients to participate in clinical studies."
• The Muscular Dystrophy Association research page has information on current clinical trials, ongoing research, research grant programs, and conferences on MD. The association is the largest nongovernmental funder of research on neuromuscular diseases.
• The FSH Society includes information about this society’s international research consortium, research contacts, and grant opportunities.
• The Parent Project Muscular Dystrophy Research page contains research news and information on research strategies, agents already in the therapeutic pipeline, and drug development. The project also maintains information about funded research, clinical trials, and grantee resources.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.