McCune-Albright Syndrome (MAS): For Researchers and Health Care Providers

• NICHD
  • The NICHD’s Child Health Research Center Program is a K-12 program that seeks to establish Centers of Excellence in pediatric research. This program fills the gap in training of junior faculty who intend to devote their careers to academic pediatrics. The K–12 program provides funding for sustained mentoring and laboratory-based training and provides the vital foundation to compete for grant funding.
  • The NICHD’s Pediatric Growth and Nutrition Branch provides a focus for research and research training in nutritional science, childhood antecedents of adult disease, developmental endocrinology, developmental neuroendocrinology, and physical growth and body composition, including bone health and obesity. Research supported in these areas is directed toward laying the groundwork for future health.
• National Institute of Dental and Craniofacial Research (NIDCR). The NIDCR conducts research on MAS and fibrous dysplasia.
• The American Association of Clinical Endocrinologists (AACE). Members of AACE are physicians with special education, training, and interest in the practice of clinical endocrinology.
• Medscape provides information on pathophysiology, physical features, treatment, and other aspects of McCune-Albright syndrome and Pediatric McCune-Albright syndrome.
• The Magic Foundation addresses growth hormone deficiencies and other growth disorders. It provides general information on MAS. It also has posted a presentation at a 2009 convention given by an NIH researcher titled "What is McCune-Albright syndrome, and how to take care of your child with MAS (PDF - 1.4 MB)."
• The Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily. The full-text, referenced overviews in OMIM contain information on all known Mendelian disorders, and over 12,000 genes. See the McCune-Albright Syndrome webpage for MAS genetic details.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.