The NICHD’s Intellectual and Developmental Disabilities Branch funds three Fragile X Syndrome Research Centers. The centers are geared toward stimulating multidisciplinary, multi-institutional research and translating basic research findings into clinical practice.
In 2009, the NIH developed a research plan to advance the understanding of Fragile X syndrome and its associated conditions. The plan puts forward goals to guide future research, setting research priorities for each of the conditions. A major priority is to investigate the biological processes underlying all three disorders and how to better diagnose and treat them. Other priorities are studying the prevalence of the gene variations in the population and how the three conditions affect families.
This NICHD clinical research program conducts studies to develop improved treatments for young women with POI.
This NICHD-funded network conducts large, multicenter clinical trials of diagnostic and therapeutic interventions for male and female infertility and reproductive diseases and disorders.
The Fragile X Clinic and Research Program at Rush University in Chicago is part of the Fragile X-Associated Disorders Program, which provides clinical care and research opportunities to individuals affected by any Fragile X-associated disorder.
The center, part of the Kennedy Krieger Institute in Baltimore, conducts research on Fragile X and Fragile X-associated disorders.
ASRM works to advance reproductive medicine and provides educational information to the public and health professionals.
Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.
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