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Adrenal Gland Disorders: For Patients and Consumers

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General Information

Services, Resources, and Support

  • CARES (Congenital Adrenal Hyperplasia Research, Education & Support) Foundation External Web Site Policy
    CARES is a nonprofit organization that supports research on and education about congenital adrenal hyperplasia (CAH). CARES provides the latest resources available to families and individuals with CAH and strives to increase awareness of CAH in the health care community.
  • GIST Support International External Web Site Policy
    This all-volunteer group includes patients with gastrointestinal stromal tumor (GIST) cancer, family members, friends, and interested professionals. The e-mail distribution list has 1,500 subscribers who form an online community to share information about GIST treatment and to support each other in living with GIST.
  • OncoLink External Web Site Policy
    This website from the Abramson Cancer Center at the University of Pennsylvania gives cancer patients, families, health care providers, and the general public accurate cancer-related information at no charge.
  • Pediatric GIST External Web Site Policy
    This nonprofit organization provides support—through information, education, and innovative research—to pediatric patients with GIST and their families. The group’s website includes a Carney’s Triad External Web Site Policy section page with extensive information on the Carney Triad and links to published studies.

Please note: Links to organizations and information included on this page do not indicate endorsement from the NICHD, NIH, or HHS.​​​​

Last Updated Date: 11/22/2013
Last Reviewed Date: 09/30/2013
Vision National Institutes of Health Home BOND National Institues of Health Home Home Storz Lab: Section on Environmental Gene Regulation Home Machner Lab: Unit on Microbial Pathogenesis Home Division of Intramural Population Health Research Home Bonifacino Lab: Section on Intracellular Protein Trafficking Home Lilly Lab: Section on Gamete Development Home Lippincott-Schwartz Lab: Section on Organelle Biology