Adolescence: A human life stage that begins at twelve years of age and continues until twenty-one complete years of age, generally marked by the beginning of puberty and lasting to the beginning of adulthood.
Code List: A type of flat controlled vocabulary also known as Permissible Value. The exact names, codes and text that can be stored in a data field in an information management system. (NCIt)
Concept: An idea description that characterizes the common properties of a set of objects or items.
Common Data Element: Data elements that have been determined to be identical between projects or contexts.
Controlled Vocabulary: A specified list of terms with a fixed and unalterable meaning, and from which a selection is made when cataloging, indexing, or searching books, journals, and other documents. The control is intended to avoid the scattering of related subjects under different headings. (NCIt)
Data: A collection or single item of factual information, derived from measurement or research, from which conclusions may be drawn.
Data Element: A unit of data for which the definition, identification, representation, and permissible values are specified by means of a set of attributes.
Data Element Concept: A concept that can be represented in the form of a data element, described independently of any particular representation.
Data exchange: The process of taking data structured under a source schema and actually transforming it into data structured under a target schema, so that the target data is an accurate representation of the source data. (Wikipedia)
Domain: A specific subject area or area of knowledge, like medicine, tool manufacturing, real estate, automobile repair, financial management, etc.
Early Adolescence: A human life stage that begins at twelve years of age and continues until eighteen complete years of age. This phase marks the start of physical, physiological, and psychological changes that characterize pubertal growth and development.
Early Childhood: A human life stage that begins at two years of age and continues until five complete years of age.
Embryonic Stage: A human life stage, during prenatal development, that begins at fertilization and typically continues until the end of eight weeks after fertilization, with full formation of the embryo.
Fetal Stage: A human life stage, during prenatal development, that typically begins at the beginning of nine weeks after fertilization (full formation of the embryo) and continues until birth.
Harmonization: The process of reducing a collection of definitions, some of which may be redundant or overlapping, to a single, unambiguous set.
Infant Stage: A human life stage that begins at birth and continues until twelve complete months of age.
Interoperability: The ability of two or more systems or components to exchange information and to use the information that has been exchanged. Semantic interoperability is the ability to automatically interpret the information exchanged meaningfully and accurately, in order to produce useful results as defined by the end users of both systems.
Late Adolescence: A human life stage that begins at nineteen years of age and continues until twenty-one complete years of age. This phase includes the final stages of pubertal growth and development as well as the attainment of significant psycho-social milestones.
Metadata: Information that describes the characteristics of a piece of data – such as the format, method of collection, etc.
Metadata Repository: A central location in an organization where metadata definitions are stored and maintained in a controlled method.
Middle Childhood: A human life stage that begins at six years of age and continues until eleven complete years of age.
Neonatal Stage: A human life stage that begins at full term birth and continues until twenty-seven complete days of age.
Ontology: An ontology provides a shared vocabulary that defines the terms used to describe and represent an area of knowledge (for example, Pediatrics, Immunology, etc.). It is used by people, databases, and applications that need to share domain information.
OWL: The Web Ontology Language (OWL) is a semantic markup language for publishing and sharing ontologies on the World Wide Web. OWL is a W3C standard.
Subject Matter Expert (SME): A person, usually a researcher, with large amounts of personal experience in a specific research domain.
Term: Words or groups of words given unique meanings in a specific context.
Terminology: A collection of defined terms and concepts around a specific subject of domain. This collection of terms can be used to ensure that data collected from multiple sources can be easily understood. A structured terminology is composed of concepts along with synonymous terms, properties and various relationships, especially a taxonomy.
Toddler Stage: A human life stage that begins at thirteen months of age and continues until twenty-four complete months of age.
Use Case: An explicit scenario designed to help in determining whether a system/process is capable of performing the functions required for a particular use. A use case might describe, for example, how a study coordinator would use a tablet computer to capture medical history data.