Department of Health and Human Services
National Institutes of Health
Eunice Kennedy Shriver National Institute of Child Health and
Human Development
One-Hundred-Thirty-Ninth Meeting
NATIONAL ADVISORY CHILD HEALTH AND HUMAN DEVELOPMENT COUNCIL
September 21, 2009
Building 31, C-Wing, Conference Room 6
9000 Rockville Pike
Bethesda, Maryland 20892
Closed Circuit Viewing Overflow (Conference Room 7)
Contact Number: 301-594-7232
Conference Room 6: 301-402-8578
TENTATIVE AGENDA (Draft)
OPEN PORTION Monday, September 21, 2009 (8:00 a.m. - 2:00 p.m.)
8:00 - 8:15 a.m.
I. CALL TO ORDER AND INTRODUCTORY REMARKS
- (A) Review of Confidentiality and Conflict of Interest
- (B) Council Minutes - June 11, 2009
- (C) Future Meeting Dates:
January 28, 2010 (Thursday)
June 3, 2010 (Thursday)
September 20, 2010 (Monday)
January 20, 2011 (Thursday)
June 2, 2011 (Thursday)
September 22, 2011 (Thursday)
8:15 - 8:35 a.m.
II. NICHD DIRECTOR’S REPORT AND DISCUSSION Dr. Duane Alexander
8:35 - 9:15 a.m.
III. DIVISION OF INTRAMURAL RESEARCH (Annual Review) Dr. Constantine Stratakis
9:15 - 10:45 a.m.
IV. INTELLECTUAL AND DEVELOPMENTAL DISABILITIES BRANCH PRESENTATION
| (A) Overview and Future Directions | Dr. Melissa Parisi |
| (B) Rare Diseases Involving Fundamental Pathways: The Natural History of Urea Cycle Disorders and the Quest for Better Outcomes | Dr. Mendel Tuchman |
| (C) Progress in Autism Research: Integrating Genetics, Neurobiology, Imaging Studies, and Clinical Treatments | Dr. Susan Y. Bookheimer |
| (D) Discussants | Dr. Sherin Devaskar
Dr. Robert Morris |
BREAK (10:45 to 11:00 a.m.)
11:00 - 11:30 a.m.
V. AMERICAN RECOVERY AND REINVESTMENT ACT UPDATE Dr. Sally Rockey
11:30 a.m. - 12:00 p.m.
VI. NEW BUSINESS: To Be Determined
12:00 - 12:25 p.m.
VII. NATIONAL CHILDREN'S STUDY UPDATE Dr. Steven Hirschfeld
12:25 - 12:35 p.m.
VIII. REPORT OF THE SUBCOMMITTEE ON PLANNING AND POLICY Dr. Enriqueta Bond
12:35 - 12:50 p.m.
IX. CONCEPT CLEARANCE REVIEW AND DISCUSSION Dr. Alexander/Staff
12:50 - 1:00 p.m.
X. COMMENTS OF RETIRING MEMBERS
Dr. Enriqueta Bond
Consultant
Marshall, VA | Dr. Sandra Carson
Women and Infants Hospital of Rhode Island
Providence, RI | Dr. Robert Morris
Georgia State University
Atlanta, GA | Dr. Mark Phillippe
University of Vermont College of Medicine
Burlington, VT |
LUNCH (1:00 - 2:00 p.m.)
CLOSED PORTION Monday, September 21, 2009 (2:00 p.m. - Adjournment)
This portion of the meeting is being closed to the public in accordance with the provisions set forth in Section 552b(c)(4) and 522b(c)(6), Title 5, U.S.C. and Section 10(d) of the Federal Advisory Committee Act, as amended U.S.C. Appendix 2.
REVIEW OF APPLICATIONS Dr. Yvonne Maddox
| Center for Developmental Biology and Perinatal Medicine |
| Intellectual and Developmental Disabilities Branch | Dr. Melissa Parisi |
| Developmental Biology, Genetics and Teratology Branch | Dr. A. Tyl Hewitt |
| Pregnancy and Perinatology Branch | Dr. Catherine Spong |
| |
| Center for Research for Mothers and Children |
| Obstetric and Pediatric Pharmacology Research Branch | Dr. Anne Zajicek |
| Pediatric, Adolescent and Maternal AIDS Branch | Dr. Lynne Mofenson |
| Child Development and Behavior Branch | Dr. Peggy McCardle |
| Endocrinology, Nutrition and Growth Branch | Dr. Gilman Grave |
| |
| Center for Population Research |
| Contraception and Reproductive Health Branch | Dr. H. Trent MacKay |
| Demographic and Behavioral Sciences Branch | Dr. Rebecca Clark |
| Reproductive Sciences Branch | Dr. Louis DePaolo |
| |
| Division of Special Populations, OD, NICHD |
| Extramural Associates Program | Dr. Regina Smith James |
| |
| National Center for Medical Rehabilitation Research |
| Pediatric Critical Care and Rehabilitation Program | Dr. Carol Nicholson |
| Behavioral Science and Rehabilitation Technologies Program | Dr. Louis Quatrano |
| Biological Science and Career Development Program | Dr. Ralph Nitkin |
| Spinal Cord and Musculoskeletal Disorders and Assistive Devices Program | Dr. Nancy Shinowara |
| Traumatic Brain Injury and Stroke Rehabilitation Program | Dr. Beth Ansel |
XI. ADJOURNMENT
PRESENTERS
Dr. Duane Alexander
Director
NICHD/NIH
Bethesda, MD
Dr. Enriqueta Bond
Consultant
Research Triangle Park, NC
Dr. Sally Rockey
Acting Deputy Director for Extramural Research
Office of Extramural Reserach
National Institutes of Health
Bethesda, MD
Dr. Melissa Parisi
Chief
Intellectual and Developmental Disabilities Branch
Center for Developmental Biology and Perinatal Medicine
NICHD/NIH
Bethesda, MD
Dr. Mendel Tuchman
Professor of Pediatrics, Biochemistry, and Molecular Biology
Children's National Medical Center
Center for Clinical and Community Research
George Washington University
Washington, DC
Dr. Susan Y. Bookheimer
Professor
Department of Psychiatry and Biohavioral Sciences
David Geffen School of Medicine
University of California, Los Angeles
Los Angeles, CA
Dr. Constantine Stratakis
Acting Scientific Director
Division of Intramural Research
NICHD/NIH
Bethesda, MD
Dr. Steven Hirschfeld
Associate Director for Clinical Research
and
Acting Program Director
National Children's Study
NICHD/NIH
Bethesda, MD
Dr. Yvonne Maddox
Deputy Director
NICHD/NIH
Bethesda, MD
