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Down Syndrome: National Conference on Patient Registries, Research Databases, & Biobanks

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December 2-3, 2010

Sponsors/Co-Sponsors

Intellectual and Developmental Disabilities (IDD) Branch, NICHD; Global Down Syndrome Foundation

Location

Neurosciences Building, 6001 Executive Boulevard, Rockville, Maryland

Purpose

This conference brought together leaders in the fields of Down syndrome clinical care, advocacy, and research, along with federal partners, including the NICHD. The goal of the meeting was to formulate a strategy for establishing and/or integrating patient registries, research databases, and biobanks into Down syndrome research to further advance the science and clinical trials that will benefit individuals with Down syndrome and their families.

For More Information

Contact

Dr. Melissa Parisi, IDD Branch, NICHD
Tel: (301) 496-1383
E-mail: parisima@mail.nih.gov

Last Updated Date: 11/30/2012
Last Reviewed Date: 11/30/2012