Chair: Sean Blackwell, M.D.
Monday, January 25, 2010
Tuesday, January 26, 2010
Day 1 – Monday, January 26, 2010
|8:30 a.m.–9:30 a.m.
|9:30 a.m.–9:50 a.m.
||Welcome, Introductions |
Caroline Signore, M.D., M.P.H.
Wanda K. Jones, Dr.P.H.
Sean Blackwell, M.D.
|9:50 a.m.–10:05 a.m.
||Pregnancy and Physical Disability (PDF - 234 KB)|
Joanne Thierry, Ph.D., M.S., M.S.W.
|The prevalence and type of physical disabilities in women of reproductive age; demographic characteristics; incidence of pregnancy in women with physical disabilities; key research gaps |
|10:05 a.m.–10:20 a.m.
II. Available evidence of pregnancy outcome in women with physical disabilities
|For specific conditions, brief review of their characteristics; evidence of associated rates of pregnancy outcomes, such as preterm birth, low birth weight, fetal growth restriction, stillbirth, preeclampsia, and postpartum maternal outcome; reciprocal effects of disabling condition and pregnancy; key research gaps |
|10:20 a.m.–10:35 a.m.
||Outcomes of Pregnancy in Women withSpinal Cord Injuries |
Amie Jackson, M.D.
|10:35 a.m.–10:55 a.m.
||Outcomes of Pregnancy in Women with Multiple Sclerosis,|
Rheumatoid Arthritis (PDF - 697 KB)
Eliza Chakravarty, M.D., M.S.
|10:55 a.m.–11:15 a.m.
||Outcomes of Pregnancy in Women with Other Disabling Conditions (including cerebral palsy, neural tube defects, and others) (PDF 849 KB)|
Margaret Turk, M.D.
|11:15 a.m.–11:30 a.m.
|11:30 a.m.–12:30 p.m.
||Lunch Break |
III. Available evidence of pregnancy-associated risk to mother and baby in women with physical disabilities
|12:30 p.m.–1:00 p.m.
||Risk to Mothers (PDF - 327 KB)|
Alessandro Ghidini, M.D.
|Evidence of incidence, management, and prevention of pregnancy-associated morbidity (e.g., autonomic dysfunction, urinary tract infection, skin breakdown, pulmonary or cardiovascular dysfunction, and thromboembolic disease) in women with physical disabilities; key research gaps |
|1:00 p.m.–1:25 p.m.
||Risk to Infants (PDF - 417 KB) |
Kristi Kirschner, M.D.
Christina Morton, M.D.
|Evidence of fetal and infant risks, including medication exposures, congenital anomalies, and key research gaps |
|1:25 p.m.–1:45 p.m.
||Psychosocial Risk Factors and Outcomes (PDF - 454 KB)|
Margaret Nosek, Ph.D. (virtual attendee)
|Evidence of psychosocial risk in women with physical disabilities (e.g., violence, neglect, and substance use); reciprocal influence of pregnancy and psychosocial factors; key research gaps |
|1:45 p.m.–2:00 p.m.
||Impact of Stress/Mental Health (PDF - 308 KB)|
Rosemary Hughes, Ph.D.
|Evidence of the incidence/prevalence of chronic stress and poor mental health in women with physical disabilities; reciprocal influences of stress and mental health and pregnancy; key research gaps |
|2:00 p.m.–2:20 p.m.
|2:20 p.m.–2:35 p.m.
IV. Identifying and overcoming barriers
|2:35 p.m.–2:55 p.m.
||Barriers to Obtaining Appropriate Prenatal Care |
Lisa Iezzoni, M.D., M.Sc.
|Evidence of barriers to obtaining health care that women with physical disabilities encounter, including socioeconomic, transportation, physical access, and attitudinal barriers; impact of barriers on adequacy of prenatal care; strategies and methods for overcoming barriers to care; key research gaps |
|2:55 p.m.–3:20 p.m.
||Barriers to Parenting |
Megan Kirshbaum, Ph.D.
|Evidence of initiation and maintenance of breastfeeding; strategies to facilitate breastfeeding; the role and development of adaptive methods for newborn care; attitudinal barriers and legal issues faced by parents with physical disabilities; key research gaps |
|3:20 p.m.–3:50 p.m.
|3:50 p.m.–4:00 p.m.
Sean Blackwell, M.D.
Day 2—Tuesday, January 26
|8:30 a.m.–9:00 a.m.
|9:00 a.m.–10:30 a.m.
||Breakout Groups: |
|Summarize evidence; reach consensus conclusions where possible; highlight and prioritize |
||Breakout Group I: Available Evidence of Pregnancy Outcomes in Women with Physical Disabilities |
Moderator: Sean Blackwell, M.D.
Rapporteur: Uma Reddy, M.D., M.P.H.
||Breakout Group II: Available Evidence of Pregnancy-Associated Risk to Mother and Baby in Women with Physical Disabilities |
Moderator: Alessandro Ghidini, M.D.
Rapporteur: Catherine Spong, M.D.
||Breakout Group III: Epidemiology and Identifying and Overcoming Barriers |
Moderator: Ahmet Baschat, M.B., B.C.H.
Rapporteur: Debby Berlyne
|10:30 a.m.–10:45 a.m.
|10:45 a.m.–11:45 a.m.
||Presentations from Breakout Groups (20 minutes each) |
|11:45 a.m.–12:45 p.m.
|12:45 p.m.–1:00 p.m.
Sean Blackwell, M.D.
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