Agenda
Chair: Sean Blackwell, M.D.
Monday, January 25, 2010
Tuesday, January 26, 2010
Day 1 – Monday, January 26, 2010
| 8:30 a.m.–9:30 a.m. |
Registration |
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| 9:30 a.m.–9:50 a.m. |
Welcome, Introductions
Caroline Signore, M.D., M.P.H.
Wanda K. Jones, Dr.P.H.
Sean Blackwell, M.D. |
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I. Epidemiology
| 9:50 a.m.–10:05 a.m. |
Pregnancy and Physical Disability (PDF - 234 KB)
Joanne Thierry, Ph.D., M.S., M.S.W. |
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| The prevalence and type of physical disabilities in women of reproductive age; demographic characteristics; incidence of pregnancy in women with physical disabilities; key research gaps |
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| 10:05 a.m.–10:20 a.m. |
Discussion |
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II. Available evidence of pregnancy outcome in women with physical disabilities
| For specific conditions, brief review of their characteristics; evidence of associated rates of pregnancy outcomes, such as preterm birth, low birth weight, fetal growth restriction, stillbirth, preeclampsia, and postpartum maternal outcome; reciprocal effects of disabling condition and pregnancy; key research gaps |
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| 10:20 a.m.–10:35 a.m. |
Outcomes of Pregnancy in Women withSpinal Cord Injuries
Amie Jackson, M.D. |
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| 10:35 a.m.–10:55 a.m. |
Outcomes of Pregnancy in Women with Multiple Sclerosis,
Rheumatoid Arthritis (PDF - 697 KB)
Eliza Chakravarty, M.D., M.S. |
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| 10:55 a.m.–11:15 a.m. |
Outcomes of Pregnancy in Women with Other Disabling Conditions (including cerebral palsy, neural tube defects, and others) (PDF 849 KB)
Margaret Turk, M.D. |
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| 11:15 a.m.–11:30 a.m. |
Discussion |
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| 11:30 a.m.–12:30 p.m. |
Lunch Break |
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III. Available evidence of pregnancy-associated risk to mother and baby in women with physical disabilities
| 12:30 p.m.–1:00 p.m. |
Risk to Mothers (PDF - 327 KB)
Alessandro Ghidini, M.D. |
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| Evidence of incidence, management, and prevention of pregnancy-associated morbidity (e.g., autonomic dysfunction, urinary tract infection, skin breakdown, pulmonary or cardiovascular dysfunction, and thromboembolic disease) in women with physical disabilities; key research gaps |
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| 1:00 p.m.–1:25 p.m. |
Risk to Infants (PDF - 417 KB)
Kristi Kirschner, M.D.
Christina Morton, M.D. |
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| Evidence of fetal and infant risks, including medication exposures, congenital anomalies, and key research gaps |
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| 1:25 p.m.–1:45 p.m. |
Psychosocial Risk Factors and Outcomes (PDF - 454 KB)
Margaret Nosek, Ph.D. (virtual attendee) |
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| Evidence of psychosocial risk in women with physical disabilities (e.g., violence, neglect, and substance use); reciprocal influence of pregnancy and psychosocial factors; key research gaps |
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| 1:45 p.m.–2:00 p.m. |
Impact of Stress/Mental Health (PDF - 308 KB)
Rosemary Hughes, Ph.D. |
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| Evidence of the incidence/prevalence of chronic stress and poor mental health in women with physical disabilities; reciprocal influences of stress and mental health and pregnancy; key research gaps |
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| 2:00 p.m.–2:20 p.m. |
Discussion |
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| 2:20 p.m.–2:35 p.m. |
Break |
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IV. Identifying and overcoming barriers
| 2:35 p.m.–2:55 p.m. |
Barriers to Obtaining Appropriate Prenatal Care
Lisa Iezzoni, M.D., M.Sc. |
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| Evidence of barriers to obtaining health care that women with physical disabilities encounter, including socioeconomic, transportation, physical access, and attitudinal barriers; impact of barriers on adequacy of prenatal care; strategies and methods for overcoming barriers to care; key research gaps |
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| 2:55 p.m.–3:20 p.m. |
Barriers to Parenting
Megan Kirshbaum, Ph.D. |
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| Evidence of initiation and maintenance of breastfeeding; strategies to facilitate breastfeeding; the role and development of adaptive methods for newborn care; attitudinal barriers and legal issues faced by parents with physical disabilities; key research gaps |
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| 3:20 p.m.–3:50 p.m. |
Discussion |
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| 3:50 p.m.–4:00 p.m. |
Wrap-up
Sean Blackwell, M.D. |
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| 4:00 p.m. |
Adjourn |
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Day 2—Tuesday, January 26
| 8:30 a.m.–9:00 a.m. |
Breakfast |
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| 9:00 a.m.–10:30 a.m. |
Breakout Groups: |
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Summarize evidence; reach consensus conclusions where possible; highlight and prioritize
research gaps |
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Breakout Group I: Available Evidence of Pregnancy Outcomes in Women with Physical Disabilities
Moderator: Sean Blackwell, M.D.
Rapporteur: Uma Reddy, M.D., M.P.H. |
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Breakout Group II: Available Evidence of Pregnancy-Associated Risk to Mother and Baby in Women with Physical Disabilities
Moderator: Alessandro Ghidini, M.D.
Rapporteur: Catherine Spong, M.D. |
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Breakout Group III: Epidemiology and Identifying and Overcoming Barriers
Moderator: Ahmet Baschat, M.B., B.C.H.
Rapporteur: Debby Berlyne |
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| 10:30 a.m.–10:45 a.m. |
Break |
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| 10:45 a.m.–11:45 a.m. |
Presentations from Breakout Groups (20 minutes each) |
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| 11:45 a.m.–12:45 p.m. |
Discussion |
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| 12:45 p.m.–1:00 p.m. |
Wrap-up
Sean Blackwell, M.D. |
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| 1:00 p.m. |
Adjourn |
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