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Strengthening Newborn Screening in the Middle East & North Africa Supplemental Resources

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November 13-15, 2006

Supplemental Resources

Regional Public Health Issues
Newborn Screening
Specific Diseases
Technologies
Education and Advocacy
Infrastructure
Research Grants and Training
Registries

Please note that, to conserve space, many abbreviations and acronyms are not spelled out in the list below. You can visit the abbreviations and acronyms page for a full listing.

Regional Public Health Issues

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Newborn Screening

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Specific Diseases

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Technologies

  • A Pandor, et al. (2004). Clinical effectiveness and cost-effectiveness of neonatal screening for inborn errors of metabolism using tandem mass spectrometry: A systematic review. Health Technology Assessment, 8(12). View publication project details External Web Site Policy

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Education and Advocacy

  • ORPHANET External Web Site Policy - Database dedicated to information on rare diseases and orphan drugs. It aims to improve management and treatment of genetic, auto-immun, or infectious rare diseases, rare cancers, or not yet classified rare diseases.
  • March of Dimes External Web Site Policy - Aims to improve infant health by preventing birth defects and genetic conditions, provides community services, educates the public, and acts as advocates.
  • Genetic Alliance External Web Site Policy – Empowers those affected by genetic disorders and builds the capacity of genetic advocacy organizations. Advocates for new technologies, increased funding for translational research and improved access to genetic services.
  • International Genetic Alliance External Web Site Policy – Voices the interests of parent and patient organizations with an interest in genetics and biotechnology.
  • National Coalition for Health Professional Education in Genetics External Web Site Policy – Works to educate healthcare professionals about genetic disorders and emerging advances in the field.

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Infrastructure

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Research Grants and Training

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Registries

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Back to Partnership for Sustainable Newborn Screening Home

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Last Updated Date: 11/30/2012
Last Reviewed Date: 11/30/2012
Vision National Institutes of Health Home BOND National Institues of Health Home Home Storz Lab: Section on Environmental Gene Regulation Home Machner Lab: Unit on Microbial Pathogenesis Home Division of Intramural Population Health Research Home Bonifacino Lab: Section on Intracellular Protein Trafficking Home Lilly Lab: Section on Gamete Development Home Lippincott-Schwartz Lab: Section on Organelle Biology